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A TOTAL OF €1.4 million has been raised from the Ice Bucket Challenge for the Irish Motor Neurone Disease Association.
In just over a week, a further €400,000 has been raised.
‘Thank you’
Patients, staff and supporters have today put out a video thanking those that took part in the challenge of pouring ice cold water over each other.
Based on the number of donations, the IMNDA said it’s estimated that as many as half a million people across the island of Ireland deliberately drenched themselves in ice cold water to raise much needed funds for the association, which helps some 330 patients and their families deal with the challenges of motor neurone disease.
Dr. Declan Mac Daid, chairman of IMNDA said they had been “blown away by the generosity of the Irish public”.
He said the organisation watched on almost in disbelief as the total raised kept rising and rising, and people’s timelines kept filling and filling.
We cannot thank people enough for what they did. The focus now is on how the money can best be spent to deal with the needs of those living with motor neurone disease, and their families.
Spending
It is believed that 25% of the funds raised, about €350,000, will go to clinical research, led by Professor Orla Hardiman of Trinity College Dublin.
He added that the money is to be used in a variety of ways to be outlined following a detailed consultation with the IMNDA’s clients, their families, their carers and supporters of IMNDA.
“A questionnaire is in the process of being prepared which will be sent to every patient and user of the IMNDA service across Ireland to identify where the need is greatest,” he said.
McDaid added that they would like to invest in services and technology into the future, and they hope to use some of the money to establish a reserve fund to allow for the fact that the number of people being diagnosed with MND continues to rise.
He said they were committed to transparency and the spending of the money raised through the Ice Bucket Challenge will be outlined on their website, adding:
Through the generosity of the Irish public, we are now in a better position to help those people who have yet to be diagnosed.
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Another cover up incoming, either that or it’ll be dragged on so long there will never be a conclusion. Remember all the investigations into Fine gael donor Denis o Brien and Actavo/siteserv and the dealings and debt write offs he received from certain banks? Still ongoing about 5 years later!!
Evidence based? The poor girl was let down by incompetent staff. End of.
@Brian O’Connor:
I don’t think that it was the nursing staff who were to blame to be fair, didn’t one nurse repeatedly try to get her seen by a doctor?
@Costigan Family: i was myself waiting on several occasions in ED 16+ hours…. I am yet to see one busy nurse….try retail or hospitality…. Its the management thats fails miserably… Poor girl…. May she rest in heaven…
@Costigan Family: it is not the overworked doctors’ fault that the HSE is chronically underfunded. There are one thousand vacant consultant posts because of the crap conditions offered by the HSE.
We seem very likely to have a general election this year
I will vote for the party that pledges to fight the monster that is our state bureaucracy
From the department of “social protection” to the HSE these unfeeling blobs make life a misery for huge numbers of people most of whom are on low/modest incomes and in difficult circumstances
If the word “republic” is to have any meaning then the state should be on the side of citizens. Instead it seems to be constantly stonewalling or fighting its citizens in long expensive court cases.
Time for real meaningful change
@Gerry Kelly: We accept that the state is not competent enough to provide food for example (collectized farms never worked) or consumer good etc why oh why then do we think that public sector beauacrats can run a health care system. Long lines, scarcity, misallocation of resources, no accountability, service users being seen as a burden, or a nuisances-all of these things are a result of state beauacracy. The state can fund healthcare, ideally through social insurance, but I shouldn’t actually run the system. Healthcare can be delivered to a high quality without long waits e.g germany, Switzerland etc.
The people in the Midwest were promised a centre of excellence by the HSE when the a&e was closed in Ennis and Nenagh. Brendan Drumm, Mary Harney and every Minister and HSE CEO since have let the people down. Hang your heads in shame.
.. they just don’t care, not the first time or last time.. will happen again..
Do you want the truth or an enquiry?
Civil Servants do not appoint people to find truth.
I’m afraid to think what I would do if this was one of my family members.
@Paul Kavanagh: Could not agree more Paul. I cannot as a parent imagine begging, pleading for help for my child as she lay dying before my eyes.
If the ministry for health, the ceo of the hse and the ceo of the hospital involved had the slightest most minute shred of dignity they should have resigned the minute this appalling tragedy happened.
Like you said I would seriously consider taking matters into my own hands if this happened to my child.
The stardust case had a tribunal of inquiry in 1981 that was a cover up. In 2009 the government published a redacted re-edited report from Mr Paul Coffey however in 2017 after the retired Judge McCartan review he stated looking at the evidence both the Keane review and Coffey review were wrong.
I not surprised about the terms of reference because government refuses to own their fatal failures and deny natural truths and justice. Her family should walk away.
@Liam Foy: It was found in the enquiry that the two top doctors on the ward that night were more interested in broken bones and minor injuries than treating the most seriously ill, I do think that says it all! They should be demoted or struck off.
“There are insufficient doctors to care for the numbers and acuity of patients presenting in the timescale expected by the triage system, the hospital and the community”, the report stated. Blame management and the Minister for Health, not the overworked, burnt out, doctors.
I must say from my inter action with Medical Staff in a major Dublin hospital, the care has been fantastic.
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