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Cork City Hall turns blue for autism. John Grant

Here are ten things you can do for people with autism that won't cost you a penny

“Having autism defines no one.”

HAPPY WORLD AUTISM Awareness Month, where the world turns blue, events are held and articles written with the aim of increasing autism awareness.

In Ireland in recent years we have certainly become more “aware” of autism in the sense that it is a word which we hear a lot more, more people are diagnosed with the condition and we are more likely to know someone who has a diagnosis of autism.

Awareness is a really important first step to building an inclusive society however it’s important to remember that awareness and understanding are two very different things. I am aware that Mandarin is a language, I do not understand it and as a result I find it hard to interact with those who only speak that language.

The same is true of autism – so many people are aware it exists but many have no idea how to communicate with or include someone with autism or find it hard to empathise with what it is like to live with the condition.

I maintain that most people would want to include a person with autism but I also know, from my work and my own personal experiences, many people are not even aware when they are interacting with someone with autism because it is an invisible condition and so it is easy to just label a person as “weird” or ‘“strange” when in actual fact that person is trying their very best to cope socially and is different, not less.

People with autism are born with disabilities in that, having autism makes things like communication, interaction, imagination and processing the world around you more difficult. However because society do not understand or empathise with people with autism, many great disabilities are thrust on those with the condition – exclusion in school, the workplace and the community.

This World autism Awareness week you can make a difference. Below are just ten very simple changes you can make, for free and with great ease, which will make life in your community much easier for people with autism.

The 1 in 100 people in Ireland who have autism, and their families, make changes to their behaviour everyday just to fit into the world – consider making a small change in your behaviour to enable as opposed to disabling a person with the condition.

Picture 2 Cork City Hall Cork City Hall turns blue for autism. John Grant John Grant

1) Be clear, easy to understand and patient

Many people with Autism find it difficult to communicate with other people. This can present in a variety of formats – some people with autism are non-verbal or non-speaking and so rely on different forms of communication such as the use of visuals to communicate. Other people with autism are verbal but find it hard to articulate how they feel or when they are worried about something or may take a little bit longer to interpret what you are saying to them. Many people with Autism have a very literal use of language which means that humour, sarcasm or figures of speech can be confusing.

If you come across a person with autism who finds communication difficult you should try and use clear language, saying exactly what you mean and allowing the person sufficient time to respond, in others words don’t overwhelm the person with information or questions all at once. It is also an idea to consider how you can use images or written instructions if a person finds it easier to communicate that way.

Many people with autism feel they cannot participate in conversation because people simply do not know how to communicate with them or do not allow the person time to respond – make the effort and remember just because a person does not speak it does not mean they don’t have something to say.

2) Reach out to those with the condition

There is often a perception that people with autism just want to be on their own and don’t want to socialise. While some people with autism may prefer their own company many others would like to socialise in a way that worked for them but just don’t know where to start or, as was the case when I was a teenager, would become very socially anxious.

A person with autism may not know how to start a conversation or how to behave when socialising but they may love to participate. Never force a person with autism to socialise but always invite the person and even if they usually decline your invite keep offering it – so the person knows they are welcome and can participate if they wish.

People with autism often find it easier to socialise in a structured way doing something they like so find out what a person is interested in and build a social opportunity around that. Remember just because a person with autism doesn’t want to socialise at a certain time it doesn’t mean they don’t want to socialise at all.

3) Be SENSEible

Those of us with autism process our sensory environment differently. Some people with autism are hypo-sensitive to their surroundings and so need high intensity inputs such as loud noises or strong tastes while others are very sensitive to their surroundings and can become very overwhelmed.

Think of nails down a blackboard but only you can hear it – it’s not something you don’t like it’s something you can’t bear. Be mindful that the sensory environment is an accessibility issue for people with autism and so consider the environment of a social situation and how it could be made comfortable for a particular person who has autism as the sensory needs and challenges tend to vary from person to person.

4) Provide reassurances

People with autism often find change very difficult as change means the unknown and people with autism find it difficult to predict what will happen in an new situation, how people will behave and how they should behave.

You can make things easier by informing people of change in advance or if you are inviting someone somewhere to give them an agenda or a visual setting out what the place looks like, who will be there and what will happen (we call these social stories).

This can greatly reduce a person with autism anxiety and make it easier for the person to participate.

Russia World Autism Awareness Day The Dvortsovy (Palace) bridge is illuminated in blue to mark World Autism Awareness Day in St.Petersburg, Russia. AP / Press Association Images AP / Press Association Images / Press Association Images

5) Be adaptable

People with autism are expected to constantly adapt to the world around us, which is kind of funny when the condition itself is one which makes change and adaptation a little harder - yet we do it everyday!

Be willing to adapt your behaviour and plans slightly to accommodate people with autism.

6) Don’t be so quick to jump to judgement

Have you ever looked at a mother in the supermarkets whose child was very distressed or was shouting or lying on the ground and “tut tutted” or how often do you call that guy in school or that girl in work “weird” because they are a little strange or socially awkward.

People with autism are constantly falling victim to such judgement because the condition is invisible. It is easy to look at someone experiencing sensory overload and see a “bold boy” or to call that person who always says the wrong thing at the wrong time “rude” but you could just be talking about someone living with autism and doing their best.

So think twice before you judge. While of course not everyone who behaves in such ways has autism but being more understanding benefits those of us with invisible conditions and a lot of others groups too.

7) See the person first

No two people with autism are the same. Having autism defines no one. It is one part of the person.

As far as possible treat every person with autism the same as you would other people and only provide support where it is asked for or where you see it is needed.

Don’t patronise as it can be very irritating and disabling for those with the condition.

8) Watch your language

We constantly use words like “retard”, “spa” or “special” as slurs or derogatory terms.

These are highly offensive and oppressive to those with disabilities including autism as it implies that being a person with a disability is negative.

Think before you speak.

World Autism Day A purple-blue tint covers the dome of the state Capitol in Jackson, Mississippi in observance of World Autism Day. AP / Press Association Images AP / Press Association Images / Press Association Images

9) Be an ally

Now that you know some steps you can take be open to telling others and sticking up for the rights of people with autism in your conversations with other people, in school, in work and in your community.

People with autism are only 1% of the population so we do need allies in society to advance our cause.

10) Don’t be afraid to ask

I find so many of the challenges people with autism face in society is because people are afraid to ask what they can do, why a person behaves as they do or what something is.

This World Autism Awareness Month remember that asking implies your willingness to learn. While it might be overwhelming to ask an individual such a personal question if you have any burning questions why not tweet us at #AskAsIAm and we will do our best to answer all sincere questions.

Adam Harris is the 21-year-old founder and CEO of AsIAm.ie. Adam founded AsIAm.ie based on his experiences as a young person living with Asperger’s Syndrome.

Column: Autism certainly makes life harder – but diversity also makes societies flourish

Column: I have Asperger’s and I like being “different”

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    Mute brian boru
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    Apr 3rd 2016, 2:31 PM

    Great article and great advice. Well done to the writer.

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    Mute Good Early
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    Apr 3rd 2016, 3:10 PM

    Great book out now called Neurotribes. Good read for people with and without autism.
    I struggle myself and find getting through interviews to be the biggest challenge of my life. I have a higher than average IQ, several qualifications but struggle to get work. Once in a job im no different than any other employee really. The main reason for this is interviews are peppered with nonsense personal questions such as “How did you feel in x situtation?” What does it matter once the job was done and the client is happy? And to me if my brain doesn’t “see” value in such questions my.mind draws a complete blank. So to all outward appearances all is normal, but the cogs in the brain run differently.
    If people could get jobs without interviews id be a CEO tomorrow :D

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    Mute Martin Byrne
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    Apr 3rd 2016, 10:51 PM

    I know what you mean :-) I can be stopped in my tracks by ‘What’s the story?’

    Does not compute!

    Michael McCreary – Aspie Comic has some good videos you’d be able to relate to. He’s worth a Google.

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    Mute Martin Byrne
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    Apr 3rd 2016, 11:08 PM
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    Mute Davy Boy
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    Apr 3rd 2016, 2:59 PM

    Autism is what I have its not who I am

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    Mute Leighanna Rose Walsh
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    Apr 3rd 2016, 5:33 PM

    I don’t agree. I don’t “have” bisexuality or transgenderism, I am bisexual and transgender. It’s not an illness. It can be a difficulty, but it’s not that simple.

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    Mute Leighanna Rose Walsh
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    Apr 3rd 2016, 6:03 PM

    why so many people voting this down? are you people autistic? do you know what it’s like?

    respect our wishes to control our own identities.

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    Mute Martin Byrne
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    Apr 3rd 2016, 10:33 PM

    Yes I am on the spectrum and you know what – sometimes people disagree on the details, even Aspies – it’s not such a big deal, I think we all want the same thing, ultimately.

    I understand the #redinstead campaign – Aspie and proud! Aspies aren’t a problem – or a thing that needs to be fixed. We are ourselves, as we were born and the world is more interesting with us in it.

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    Mute Daithi O'Laoghaire
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    Apr 4th 2016, 2:36 AM

    Aspies? Never heard it described like that! :) Everyday’s a School day I guess.!?

    Have Asperger/s Syndrome myself; recently, belatedly detected after odd behaviours & mannerisms observed throughout my life resulted in me behaving totally out of character & inappropriately.

    It was nothing physical mind and I’m not divulging it on here but feel free to DM as I would like to compare.contrast peoples opinions on the matter of the incident and also of are people with AS the “forgotten victims” (don’t mean to use hyperbole; the phrase just seemed appropriate) or the ignored part of the Autism Spectrum as Autism can be quite severe and manifest itself in situations that make others uncomfortable (suck it up folks, you’re not the one who’s Autistic, you don’t have to deal with it & how society treats you 24/7).

    Would also be interested in peoples treatments they receive for AS & Autism, Meds, Therapies, how they were diagnosed (I went private; felt H.S.E. Psychiatrists were box-ticking exercises anytime I went for my appointments; no time perhaps to explore behaviours or run tests in this underfunded area of health system) and indeed, as someone who has been diagnosed late (ish) in life, when were ye/they diagnosed with Autism or Aspergers etc.

    Sorry for long & belated reply.

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    Mute Brída Kiely
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    Apr 4th 2016, 1:32 PM

    Autism and bisexuality are not comparable. Autism affects all aspects of the life of somebody who is autistic whereas your sexuality does not necessarily affect other areas of your life such as your learning ability or understanding of language. A person with autism could also be bisexual or transgender but the autism would present them with further problems in dealing with or understanding their sexuality if that were true for them.

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    Mute David
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    Apr 3rd 2016, 2:41 PM

    The services in this country for people with autism are a disgrace!

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    Mute Bea ⭐️
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    Apr 3rd 2016, 2:46 PM

    So many people are judgemental! As someone with ASD ( Asperger’s Syndrome ) people don’t know much about it, still. This month is so important to get awareness out about it and make more people understand! #GoBlue

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    Mute Daithi O'Laoghaire
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    Apr 4th 2016, 2:47 AM

    Please see my comment above; would love to reach out to/touch base with you & others with AS particularly & ASD in general but only if it’s appropriate, something I quite often fail to realise whether it is or isn’t.

    What I meant to add to my piece above was I wonder sometimes should Asperger/s Syndrome be taken off the ASD Spectrum & given its own category regarding diagnosis, treatments, therapies, medications etc.?

    As someone newly, belatedly in life diagnosed with AS I might be totally out of kilter with that suggestion of separation so forgive me if I am making too giant a leap.

    One thing I have noticed over the years is sometimes in social situations I can be beyond awkward until I develop a familiarity with the person/people more so than the place (though that can be an issue too) but my communication via writing when I was in Primary/National & Secondary School was something I loved & that continues today with replies like this….

    Keep meaning to take down my blog, dust it down, plug it in, switch it on & see does it still work….I closed it in 2014 for various reasons but I felt it was the best way for me to communicate; whether anybody read it or not was immaterial.

    It gave me focus, discipline & routine but concentration levels & procrastination rates were poor; I wouldn’t make a good journalist but I think some of what I’m on helps me regarding goals and deadlines.

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    Mute John Madden
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    Apr 3rd 2016, 3:14 PM

    Number 11. Write to the minister for education and convey the need for extra SNA posts in schools.

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    Mute Mark Byrne
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    Apr 3rd 2016, 4:57 PM

    Yes!!!!

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    Mute Carol Oates
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    Apr 3rd 2016, 5:56 PM

    Autism has never been something positive for my son. Any small milestones he has achieved have been in spite of it, not because of it. It’s debilitating and life limiting for him. So, I welcome anything that can make his life easier.
    Having said that, I can’t agree with 7. Autism may not define Adam but it defines my son. It is the overwhelming anchor of who he is, what he does, how he lives, the choices he makes, and the kind of future he will have. It’s not only one aspect of who he is. It’s Intrinsically woven through all his is. It absolutely defines him.

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    Mute Good Early
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    Apr 3rd 2016, 6:14 PM

    I find it defines me too. Everything is seen through the eye of autism. Its how i think and feel and cannot simply “relax” or just go with flow because someone says so. Suppose it depends where on spectrum a person is.
    I’ve spent years trying all sorts to not be who I am, but in capitalist Ireland I feel like I don’t belong. They’re are few supports for those with autism, less if any for adults.

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    Mute Leighanna Rose Walsh
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    Apr 3rd 2016, 6:47 PM

    IMO capitalism is the biggest issue for autists

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    Mute Leo Lowe
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    Apr 3rd 2016, 3:05 PM

    Both the BBC and the Open University have very interesting programmes, articles and courses that relate to autism.

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    Mute Leo Lowe
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    Apr 3rd 2016, 3:12 PM

    After Thomas and temple Grandin are two films that are well worth watching.

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    Mute Good Early
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    Apr 3rd 2016, 3:13 PM

    TED Talks too are great. The one with Temple Grandin is phenomenal!

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    Mute Leo Lowe
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    Apr 3rd 2016, 3:31 PM

    I must have a look at that. She is quite amazing.

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    Mute Ciarán Masterson
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    Apr 3rd 2016, 5:12 PM

    @Leo Lowe

    I haven’t seen the film about Temple Grandin, in which she was played by Claire Danes, whose husband, Hugh Dancy, starred in the film “Adam” (which I have seen), in which he played the eponymous character, who has Asperger’s Syndrome, a mild for of which I was diagnosed with at the age of 16 years.

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    Mute Ciarán Masterson
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    Apr 3rd 2016, 5:13 PM

    * a mild form of which…

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    Mute lt.col.pancake~iv
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    Apr 3rd 2016, 5:36 PM

    Id love to live in an.Ireland where people in coffee shops & shop queues didnt tut-tut and stare when my profoundly ASD little man decides to kick off. It is staggering how selfish and judgemental the NT public (parents especially ) can be when we’re out and about. You’d swear they couldn’t appreciate beautiful chaos. Spain is brilliant, noone gives a hoot, alas we cant do airports anymore

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    Mute Anon Ymous
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    Apr 3rd 2016, 6:10 PM

    @It.Col.Pancake: sorry, I replied to your post but put it in the wrong place! See my reply to the post above yours.

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    Mute Anon Ymous
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    Apr 3rd 2016, 6:11 PM

    @It.Col.Pancake: I’m not sure where your little one is on the spectrum, but I got a card from Irish Autism Action which explains my child has autism, finds crowds and queuing extremely difficult and any help would be appreciated. It was a godsend when travelling through airports as we didn’t have to queue at passport control, boarding, etc. It also means you don’t have to queue or pay into a lot of places as your his/her carer. Apparently it even works in Disneyland, so you avoid those queues too!
    Also, Dublin airport have social stories on their website for both terminals which I printed out and read through with my child the weeks before we travelled. You’ll find them at http://www.dublinairport.com/gns/at-the-airport/autism-asd.aspx

    (Managed to copy and paste my original reply :) )

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    Mute Martin Byrne
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    Apr 3rd 2016, 10:58 PM

    That’s a shame, Col – I hope people cop on. I don’t mind shouting, flapping, screaming kids at all. I really wish there was a better way to do airports though.

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    Mute Martin Byrne
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    Apr 3rd 2016, 10:59 PM

    (For Adults I mean)

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    Mute Leighanna Rose Walsh
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    Apr 3rd 2016, 5:31 PM

    We don’t say “people with autism”. We say “autist”. Our autism isn’t a “condition” separate of us, it’s a part of who we are. Unfortunately a lot of difficulties come with that, but the same is true of many other identifies in a noisy, hyper-competitive capitalist society.

    Most of us are also more than capable of speaking for ourselves but we’re so often denied the right. Either we’re too “low functioning” for people to bother trying to learn how we communicate, or too “high functioning” to be really autistic. Even though some days I’m incredibly articulate and others can’t communicate verbally at all.

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    Mute Leighanna Rose Walsh
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    Apr 3rd 2016, 6:02 PM

    why are so many people voting us down? i guess people really don’t like to hear autists speak for ourselves.

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    Mute Anon Ymous
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    Apr 3rd 2016, 6:08 PM

    @It.Col.Pancake: I’m not sure where your little one is on the spectrum, but I got a card from Irish Autism Action which explains my child has autism, finds crowds and queuing extremely difficult and any help would be appreciated. It was a godsend when travelling through airports as we didn’t have to queue at passport control, boarding, etc. It also means you don’t have to queue or pay into a lot of places as your his/her carer. Apparently it even works in Disneyland, so you avoid those queues too!

    Also, Dublin airport have social stories on their website for both terminals which I printed out and read through with my child the weeks before we travelled. You’ll find them at http://www.dublinairport.com/gns/at-the-airport/autism-asd.aspx

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    Mute Martin Byrne
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    Apr 3rd 2016, 10:53 PM

    ‘We’ don’t all say ‘Autists’ We say Aspie, ASD and sometimes even ‘Dwellers on the spectrum’. It’s all good so long as it’s respectful, isn’t it?

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    Mute Ian Beckett
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    Apr 3rd 2016, 2:59 PM

    If autism is regarded as an ability many prejudices disappear – yesterday I published this on LinkedIn
    http://www.linkedin.com/pulse/thinking-differently-make-difference-ian-beckett?trk=pulse_spock-articles

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    Mute Good Early
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    Apr 3rd 2016, 3:21 PM

    Fantastic Ian. There is a level of non-functioning autism that truly is a disability. But for most we are relatively ‘normal’ and its an ability, though it comes at a cost (socially).
    Some of the greatest discoveries of mankind were made by people with autism.
    If it you could put into a physical context think of a body builder. S\he’s strong but wouldn’t win against an Olympic sprinter in a race. And vice versa. But neither would claim the other suffers a disability! With autism it seems intelligence comes at the cost of social abilities.

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    Mute Leighanna Rose Walsh
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    Apr 3rd 2016, 5:32 PM

    the danger too with this is that autists are pushed into being “productive” when most of us can’t hold down jobs at all. yes – autism is more than a disability, it’s a valuable way of thinking. but it’s not generally at all compatible with our capitalist society that demands people be productive in a certain narrow fashion.

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    Mute Joe Byrne
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    Apr 3rd 2016, 2:45 PM

    Can you please explain David ?

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    Mute Marian Frawley
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    Apr 3rd 2016, 3:05 PM

    As a mum to a teen with Autism I can tell you Yes, Services like Speech Therapy and Occupational Therapy from the Hse are almost non existence, Long waiting lists (1-3 appointments per year pending where you live in the country) for these therapies which should be provided by the state but aren’t. Early Intervention is key for children with Autism..
    In Recent years, funding cuts through out the Health service, Education – Special Needs assistants, Resource hours etc
    Everything we need for our children in order to be successful and reach their full potential is a fight, & sadly “he who shouts the loudest gets it” , it dosnt come automatically, it’s not as simple as filling out a form, it’s the long wait for a decision, then the “battle” starts. So while your dealing with all that, aswell as dealing with whatever life is throwing at you, there’s the perception out there that we’re to be grateful for getting the crumbs off the floor!! World Autism Awareness day is great for raising awareness on the condition but we need help aswell.

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    Mute David
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    Apr 3rd 2016, 4:18 PM

    The list of non/bad services is too long to go into here but the first that springs to mind is a 13 month wait to see the ‘early intervention’ team from time of diagnoses. And you even have to fight and hassle them to get that!

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    Mute Martin Byrne
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    Apr 3rd 2016, 11:02 PM

    One important thing that’s said is that if you’ve met one person with Autism you’ve met one person with Autism. Every one is different. But every one needs a bit of patience and understanding.

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    Mute Kal Ipers
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    Apr 3rd 2016, 6:10 PM

    This may seem really strange but I really want to meet somebody autistic and see if we can talk about something and come up with new ideas. Would love to give an art idea or complex problem to somebody with the condition to see a new view. Escher type ideas.

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    Mute Good Early
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    Apr 3rd 2016, 6:56 PM

    Good suggestion but sadly that’s not how it works. Some people wth autism may give a different view, some will give the same view as you but communicated in another way. while others may have no view at all but have savant style implementation abilities yet need to be hand-held through the whole process.

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    Mute Good Early
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    Apr 3rd 2016, 7:02 PM

    In fact your experiment would work better if you asked for their view on boring, mundane everyday things rather than ‘complex equations’. Being autistic doesn’t necessarily make one good at art or maths. Our true genius hides in plain sight

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    Mute Kal Ipers
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    Apr 3rd 2016, 7:03 PM

    thanks for the foresight I hope there is some possible exchange

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    Mute Teresa Quigley
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    Apr 3rd 2016, 7:30 PM

    Please post the original article on Facebook. I think it will reach many more people that way.

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    Mute Good Early
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    Apr 3rd 2016, 3:13 PM

    Beat me to it Leo!!!

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    Mute Tich Ennis
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    Apr 5th 2016, 4:39 PM

    Everyone should be treated according to your ten tips. No one should be treated as different.

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