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IT’S EVERY PARENT’S worst nightmare, watching your child go from healthy to seriously unwell in a matter of minutes.
Any parent whose child has contracted meningitis knows how quickly they can deteriorate and need urgent medical help.
Meningitis is the swelling of the lining around the brain and spinal cord, while septicaemia is blood poisoning caused by the same germs. They can occur together or separately.
The conditions can kill within hours, making it vital to be aware of the symptoms and act accordingly.
In February 2016, Matt Dawson’s son Sami (then two years old) contracted W135, a rare strain of meningitis.
He ended up in Great Ormond Street Hospital in London, where he was placed in an induced coma.
Dawson recalls: “From a morning where we thought he was a little bit poorly and probably had a fever it progressed very, very quickly into ‘We need to get him down to A&E’.
“By the end of the day he was in an induced coma and rushed off to Great Ormond Street and there for two weeks, it was all a little bit of a blur.
It puts into perspective not only how important your family are, but what you can do to assist in those types of times because I wouldn’t say for a minute that my knowledge of meningitis was particularly high at that time.
Dawson, a former England rugby union captain, has been raising awareness about meningitis since Sami’s battle with the illness.
Today he was in Dublin with Ireland captain Rory Best to promote Tackle Meningitis, a campaign aimed at increasing people’s knowledge about the condition, its symptoms and strains.
A new survey conducted by GSK to mark World Meningitis Day, which is happening today, found that 44% of Irish parents think a distinctive rash is the first symptom of meningitis, despite the fact it often appears after other symptoms or not at all.
This was the case for Sami, Dawson tells TheJournal.ie: “Half of parents would think that you get that red rash on the body, put the glass on it, if it doesn’t disappear, ‘Oh, it could be meningitis’ – well, we didn’t even get to that stage, myself and my wife.
“It was more that we knew, our gut instinct was that there was something wrong…
The symptoms could be as obvious as feverish, a little bit grumpy, would be sort of cowering away from bright lights, cold hands and feet even though the body would be really hot and feverish, nausea, diarrhoea, all of a sudden when you add some of those together that’s before you even get to the rash.
“He was in ICU for just over a week and then was in a kidney rehabilitation unit – he went through several dialysis treatments and a blood transfusion, there was a lot of strain on his kidneys and his main organs.”
Dawson recalled how difficult it was to watch Sami in the induced coma, telling us: “There was no reaction, he was there just sort of motionless.
“It’s the worst thing for a parent when you’re stroking their forehead and telling them stories and they’ve just got their eyes closed, in a world of their own, and you don’t know from one minute to the next if you’re going to see them again.
“It’s an incredibly difficult thing to take on board and to compute.”
Various strains
There are several strains of meningococcal bacteria with the main groups being A, B, C, W, X and Y.
Vaccines are available to protect against some of the strains, however, no single vaccine protects against all of them. Sami had received the meningitis C vaccine.
“Nowadays actually in Ireland you would get B and C [vaccination publicly] which is great news but there are other strains … We had the men C vaccine, we thought ‘Oh, it can’t be meningitis because he’s had the jab’.
“Again there are plenty of parents out there who wouldn’t necessarily know that there are lots of other strains even though you’ve been vaccinated,” Dawson warns.
‘Trust your gut’
Best, also a father-of-two, said he was happy to team up with Dawson to raise awareness, noting he was one of the parents who thought a rash was the first thing to look for in terms of identifying meningitis.
“The most important thing in the world to you are your kids, you don’t really realise it until you become a parent.
Then to realise that minutes, 10, 20 minutes at that stage can make a massive difference, and to know what those early signs are and to be able to go, even to check the HSE.ie website, phone your GP, get to A&E and trust your gut on it a bit because at that stage it can be critical to get help as soon as possible.
“It’s only whenever something happens or you hear of something happening to somebody else, that’s when it really hits home, how devastating this disease can be, but also how precious your kids are.”
Sami, now three, is thankfully back to full health.
Dawson tells us: “He’s great, he’s a normal three-year-old lad playing with his older brother, scrapping, cuddling, kissing, poking each other’s eyes out, normal sibling rivalry, very fit and healthy, very sharp.”
Symptoms
Meningitis is usually bacterial or viral, and occasionally is due to fungal infections, although almost any microbe can cause it.
Viral meningitis is almost never life-threatening and most people quickly make a full recovery. Bacterial meningitis is more serious and can be caused by a range of different bacteria.
Symptoms can include fever, vomiting, headache and feeling unwell. Limb pain, pale skin and cold hands and feet often appear earlier than the rash, neck stiffness, dislike of bright lights and confusion.
Most cases in Ireland and the UK are caused by meningococcal bacteria.
There are about 200 cases of meningitis in Ireland every year. The Meningitis Research Foundation notes that about one in 10 people who contract it die as a result.
One in 10 survivors will end up with a disability such as brain damage or hearing loss or need an amputation, while three in 10 survivors will have side effects such as psychological disorders and a reduced IQ.
If you suspect someone may have meningitis or septicaemia, seek medical help immediately.
For more information and support visit the Meningitis Research Foundation and ACT for Meningitis.
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I unfortunately had to register the death of a family member recently. Got the paperwork from the hospital in January and wanted to get it sorted quickly but was told the next available appointment at the registry office was in March. Five days is great in theory but good luck getting that go happen in practice
@Laura Diver: I’m very sorry for your loss. I hope you won’t mind me asking a genuine question? Why did you have to do it in person? My mam passed away 18 months ago and we were allowed to email, was that just a covid thing I wonder? You’d think if it worked they would allow it to continue. My dad passed away more than 10 years ago and I can’t remember how we registered his, though I know we waited 6 months for his death certificate as it was a sudden death requiring post mortem. Again my condolences
Beggars belief. Currently getting through probate is a nightmare (minimum 16 weeks), even with a will made. Can’t believe the system is efficient enough to get through this in a month.
OK so I don’t give a damn about the flipping records and what statistics they want to record (unless my loved one did die from plague or the likes). Hounding the grieving like that is disgraceful.
@Helen Downey: absolutely agree
@Helen Downey: we were waiting 19 months to get rhe inquest for my brother.
@Helen Downey: some families might want it done as soon as possible for their own reasons, it’s not just about stats.
Three months may be longer than necessary in most instances, but the suggested timeline here is disgracefully short for a grieving family, 4-6 weeks would be far more reasonable and compassionate
@Jo H: Presumably dependants will need this proof to access pension and death grants and so on?
@Fiona Fitzgerald: Yes, financial institutions etc. won’t do anything until they are provided a copy, but not everyone needs or is able to consider starting to organise that stuff within 10 days so that might not be a driving factor for many. I know people who have acted on it that day after a funeral, others who take longer. It’s a very personal thing. There should of course be a deadline, I just think the one being proposed is too tight.
The problem is that they need to fix the system behind the scenes first rather than reducing the time for families to register as the first port of call. What is the point of reducing that if it then becomes impossible to do? I mean really.
And as for triggering other services – that would be great but lets face it, departments in this country don’t talk to each other. Or else they get a bit too ahead of themselves – my dad’s pension from the Dept. of Education was stopped on his date of death based solely off his death notice in the paper. Which didn’t contain enough information to really identify him down to an individual. Absolute madness.
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