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Child with Down Syndrome and severe autism who was abandoned at birth was 'not receiving sufficient HSE and Tusla support'

Tusla has committed to undertaking a “systemic review” of supports.

THE OMBUDSMAN FOR Children, Dr Niall Muldoon, will today publish an investigation into the case of a girl who has Down Syndrome and severe autism and who was abandoned at birth.

Molly’s case was first raised after her foster carer complained to the Ombudsman for Children’s Office about the level of support and services being provided by Tusla and the HSE.

Speaking before the publication, Dr Muldoon said that Molly* had been with her carer since birth.

“Molly is dependent on her foster carers in all areas of her care, including feeding, toileting, bathing, and dressing. She requires a wide range of therapies and services. Her foster carer complained to the OCO about the level of supports and services being provided by Tusla and the HSE. Although Molly brings joy and positivity to their home, her foster carer was struggling financially and emotionally to deal with her needs.

“We investigated Molly’s case and found that there was a lack of co-ordination between the Tusla and the HSE which meant that services and supports provided were insufficient.

“We also found that this is a problem facing many children with disabilities in care. In 2015 there were 472 children with a diagnosed moderate to severe disability in foster care, representing approximately 8% of the foster care population in Ireland.”

He added that Tusla has committed to undertaking a “systemic review” of supports.

“This is an important investigation highlighting the struggles of some of our most vulnerable children, many of whom cannot speak out for themselves. Foster carers and social workers all over the country are working tirelessly to support young people with disabilities who are in care, but we cannot be dependent on individual efforts, the system must support young people to reach their full potential.”

A statement from Tusla said:

“Tusla fully accepts the recommendations in this report, and many of these are currently being implemented. Individual supports being provided in this case are being addressed among priority actions, which include:

  • A review of the current supports being offered to this child to ensure she reaches her potential in conjunction with the HSE
  • Jointly working with the HSE to put in place any necessary supports related to any transition from her current home
  • A review of supports being offered to all children with a moderate or severe disability in foster care

“We welcome the recognition by the Ombudsman of the significant high levels of motivation, and effort made by Tusla staff to advocate strongly for this child. Tusla staff work closely with children and families who require disability services to advocate for these services from those who provide disability services.”

Jim Gibson, Chief Operations Officer, Tusla said: “Tusla accepts the recommendations made by the Ombudsman for Children, and acknowledge that improvements are required in the co-ordination of services for children with a moderate or severe disability.

“In this case Tusla staff advocated strongly for the child to receive relevant supports and I welcome the recognition by the Ombudsman for Children of this continuous effort. Our equity of care principle means that all children are treated equally, they are assessed based on their individual needs with appropriate supports put in place, whether they have behavioural problems, a disability or face another challenge.

“I have considered the report in detail, and the recommendations are currently being implemented, beginning with the individual supports being provided in this case. I will monitor their progress on a regular basis.”

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16 Comments
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    Mute PVD
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    Jan 15th 2018, 6:35 AM

    Welcome to the reality of supporting some one with a difference here , talk to parents and siblings about how we have to fight for everything.

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    Mute Clare Sharkey
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    Jan 15th 2018, 8:39 AM

    Fair play to the foster carers for contacting the Ombudsman and therefore going up against Tusla and the HSE. Not a decision taken lightly. There is a bullying mentality when you go against these agencies. Hopefully now the child and her family will get the supports they need. It’s disgraceful that the family had to put themselves through the stress and pressure to get the outcome.

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    Mute Lorraine Roche
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    Jan 15th 2018, 9:57 AM

    @Clare Sharkey: Sad thing is that TUSLA are in the process of moving the child into a residential type setting and removing her from the wonderful foster family. Wouldn’t it be much easier to put the supports in place and leave her with the loving foster family.

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    Mute Clare Sharkey
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    Jan 15th 2018, 10:37 AM

    @Lorraine Roche: its a power struggle. Easier to blame foster carers than themselves.

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    Mute Lorraine Roche
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    Jan 15th 2018, 8:37 AM

    It’s not only children with disabilities who are in care the system is failing it’s children with disabilities full stop. Your child with a disability is accepted into a service-8-18 disability service- they then have to go on waiting lists within that service for Speech& Language, Occupational Therapy, Psychologist etc…. Services are badly organised and seriously under resourced.

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    Mute Are roo from Cork
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    Jan 15th 2018, 6:38 AM

    A certain spectacle Senator with his “human rights activists” friends will be working tirelessly on this one.

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    Mute Are roo from Cork
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    Jan 15th 2018, 6:43 AM

    “bespectacled

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    Mute Bobby Connolly
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    Jan 15th 2018, 9:10 AM

    @Are roo from Cork: think you were right first time.

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    Mute Pounamustone
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    Jan 15th 2018, 7:02 AM

    Abandoned at birth !!!!!????

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    Mute David Grey
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    Jan 15th 2018, 1:59 PM

    The poor Girl can expect a lifetime of neglect by the state, funding is ridiculously low in the intellectual disability area, from childhood right through to Adult services!
    The Government should take control of all services and streamline while increasing funding – the current system with dozens of organisations with CEO’s on mainly over €100k with generous expenses is putting tax money into the wrong hands instead of into the frontline where conditions have plummeted and staff under severe pressure are leaving disillusioned!
    Put the money where it matters and strip away the red tape to give those with disabilities the services they deserve- too much of a gravy train at present!

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    Mute Misanthrope
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    Jan 15th 2018, 2:18 PM

    @David Grey: leo will be in shortly saying how “it shouldn’t be like this”

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