Advertisement

We need your help now

Support from readers like you keeps The Journal open.

You are visiting us because we have something you value. Independent, unbiased news that tells the truth. Advertising revenue goes some way to support our mission, but this year it has not been enough.

If you've seen value in our reporting, please contribute what you can, so we can continue to produce accurate and meaningful journalism. For everyone who needs it.

'I can feel the tension, the worry': Niall Tubridy on what it's like to give people a serious diagnosis

The MS expert and brother of RTÉ broadcaster Ryan Tubridy has written a new book about his career.

A PAINTER WHO believes her left hand is her guardian angel. A man who feels like his head is exploding every time he orgasms. A chef who loses his memory for six hours.

As a neurologist, Professor Niall Tubridy has come across all sorts of fascinating and strange cases. The brother of RTÉ broadcaster Ryan, Niall – who works in St Vincent’s Hospital in Dublin – followed in their psychiatrist father Patrick’s footsteps by working in the medical industry (their grandfather was a GP).

Now he has written a book called Just One More Question: Stories From A Life In Neurology, about the types of cases he’s come across in his work, but also about what he’s learned from neurology. It’s a book that will fascinate you with the patients’ tales (they’re amalgamated and anonymised) but leave you at the end pondering the notion of what life really is. 

The nature of life

As a young man, Tubridy wrote stories, but when a couple of people told him they weren’t very good, he gave up the pursuit. Later in life, he decided it was time to put pen to paper again. 

Every day, Tubridy has to break news about diagnoses to people. He has to tell them things they might not want to hear. His approach has evolved over the years, and he’s also learned that each person is so individual in terms of what they want to be told. 

He sees himself as trying to unravel the stories of people’s conditions. At first, his career was about learning the ropes, and the more he worked the more he got interested in “what layers lie beneath” each diagnosis.

I love the stories, and some are slightly bordering on the sad and some are not so sad. Some are weird: symptoms a lot of us have a lot of the time. A lot of us wake up with a numb hand now and again, shake it off and move on, but other people obviously can’t.
The older I get the more confident I am and clear about what I’m doing, the physical stuff, but the psychological stuff… [the] background to each person has become more fascinating.

He says he learned from his ‘old school’ psychiatrist dad that the best approach was to “listen, listen, listen”.

“And that’s something I’ve had to develop – I wouldn’t have been the world’s best,” he laughs. Like his brother, he’s a great chatter.  

“My dad was certainly a big influence, just a kind guy. Whenever I saw myself doing the wrong thing, I tried to adopt more of his kind bits,” he says. 

‘I can feel the tension, the stress, the worry’

One of the most common diagnoses he has to give is MS, and it’s most often young people to whom he’s handing that news. “MS can present in myriad of ways but it still comes around to young, usually young, people having a weak arm or weak leg,” he says. It was easy to conflate the stories for the book, as the road to diagnosis tends to be similar.

He tells between four and five people a week they have MS. “I can feel the tension, the stress, the worry. And there’s two steps: one of confirming the diagnosis and the next is what’s going to run through their heads.”

Women often ask if they can have a family, while men will ask can they still work – “slightly old-fashioned” approaches, Tubridy acknowledges.

The answer is usually yes to both. “And if it goes as bad as the worst case scenario can be, no one can do anything really about that,” he says.

Most of the time it’s going to be OK and that’s what we’re here for – to try and treat, monitor, and there’s new treatments, new drugs. So I’m much more truly and honestly positive and optimistic about it. It’s the truth.

He wants to show with the book that doctors have imperfections – they don’t always get it right. He is more confident with age, and says he has more insight, but can still get things wrong.

“The didactic nature is altered I think even in my career so far, that we’ll just accept what the doctor says and that’s the way it is,” he says. “So thankfully that has changed.”

Dr Google

Then there’s Dr Google. Most people, before they get to his office, “have googled themselves up to the hilt”.

Does he mind this? 

Not at all, as it turns out.

People often come into him having “run themselves round in circles of clutter of worry” and need some direction. But sometimes there is no answer. In the book, he details how there are some cases where there is no concrete answer, where a case cannot be explained. 

He will tell people in these cases: “I’m maybe not sure what it is but I know it’s not MS, I know it’s not motor neurone, I don’t think you’ll end up in a wheelchair.”

He says that works two ways – some people say that’s all they wanted to know. But others will tell him: “I never thought of this…”

But he does think that constant internet use “has cluttered all our heads”, causing stress which might manifest in symptoms.

So they say, ‘oh gosh, I’m getting tightness in my chest or pins and needles in my hands or my face’. Google that – they’re not going to get ‘you’re having a panic attack’ or [are] anxious, you’re going to get MS, wheelchair. Or at least that’s what I think our cognitive bias leads us to.

Over the last three to four years it’s been “peak Dr Google”, where “people are now googling so early that they are finding themselves in a place of chassis and worry before they’ve even had time to think about it”.

“Instead of talking to a friend or asking someone ‘could [this] be a tension headache, I’m stressed at work’, which we all get, rather [they think] ‘this is a brain tumour’. I don’t know when that changed but it seems to me to be more pervasive in the last say five years in particular, I don’t know why.”

But he does admit that it is “quite frequent” that someone has googled their symptoms and pre-empted the correct diagnosis. 

“Say someone has a shake and they’re above the age of 70 they are going to Google and find Parkinsons and the chances are people are very savvy about this – they will go on YouTube and juxtapose a pic of themselves with their dad or grandad or Michael J Fox… and go ‘that’s what this looks like’ and they’ll be right nine times out of 10. They will go to their GP, he will have spotted it. And I’m only there to try and confirm it, so by that stage that’s really helpful for me.”

This used to make him feel insecure – but he says it’s the opposite now. “I’d see it much more positive they are informed,” he says.   

With some patients, the answer might just be doing nothing. They might be asked – given all their circumstances – if they can live with the situation for six months and monitor it, see how it goes. 

“And it’s not always the answer but it gives people great confidence to say right, I’m in control of this rather than the doctor being in control,” he says. That’s one of the biggest learnings for him: people want to feel in control of their lives.

His only caveat is with something like MS, “if you go heavy complementary therapy and only complementary, there is no evidence to show it works so I would always go use the word complementary as an adjunct to other treatments”. 

He has seen an increased use of complementary treatments: “…cannabis oil, everything under the sun”, though sometimes people won’t admit what they’re taking.

“But the psychology again is very important and if they feel it’s helping them, as long as they’re doing it in conjunction with a bit of conventionalism what’s lost?” he says. “I used to be a little bit sharp about it, I used to think it was wrong.” But he’s mellowed on this – within reason.

What his work has shown him is that one day, his own brain will fall apart. “I like the reality of it,” he says. “And I just think this is it: one turn of the merry-go-round, so sometimes it can be a little bit bleak. But I think overall I’m quite an optimistic person.”

I enjoy my job. If you see a lot of bleakness or badness you say gosh stop whinging about your broken car or your dodgy washing machine. You do worry a little bit less.

Just One More Question is published by Penguin Ireland and in bookshops now.

Readers like you are keeping these stories free for everyone...
A mix of advertising and supporting contributions helps keep paywalls away from valuable information like this article. Over 5,000 readers like you have already stepped up and support us with a monthly payment or a once-off donation.

Close
6 Comments
This is YOUR comments community. Stay civil, stay constructive, stay on topic. Please familiarise yourself with our comments policy here before taking part.
Leave a Comment
    Install the app to use these features.
    Mute philip farrelly
    Favourite philip farrelly
    Report
    Apr 28th 2013, 5:14 PM

    Looking forward to watching it. Fair play too him. Hopefully he ll go on too create thousands of jobs in Waterford

    149
    Install the app to use these features.
    Mute Daniel O'Sullivan
    Favourite Daniel O'Sullivan
    Report
    Apr 28th 2013, 5:18 PM

    Nice to see a smart young lad holding his own well done.

    98
    Install the app to use these features.
    Mute Ciarán Delaney
    Favourite Ciarán Delaney
    Report
    Apr 28th 2013, 5:30 PM

    That’s fantastic, best of luck to him. Although you would hope the Dragons will offer support, advice and guidance to any Young Entrepreneurs rather than shattered their dreams.

    63
    Install the app to use these features.
    Mute Waffler Towers
    Favourite Waffler Towers
    Report
    Apr 28th 2013, 5:25 PM

    Fair play, I don’t even know how my toaster works, to borrow from Woody Allen.

    52
    Install the app to use these features.
    Mute Damocles
    Favourite Damocles
    Report
    Apr 28th 2013, 5:49 PM

    These kids you see like this and like the ones on Young Apprentice don’t you just want to shout “Climb a tree!” at them?

    39
    Install the app to use these features.
    Mute Jordan Casey
    Favourite Jordan Casey
    Report
    Apr 28th 2013, 6:25 PM

    Thanks! Last time I climbed a tree I fell off and broke my ankle.. So, probably not doing that anymore.But, that doesn’t mean we “work” all day.We have a balance, I play soccer All the time! It’s a hobby and I love it :)

    167
    Install the app to use these features.
    Mute Justin Credible
    Favourite Justin Credible
    Report
    Apr 28th 2013, 6:30 PM

    Starstruck

    43
    See 4 more replies ▾
    Install the app to use these features.
    Mute Dmc
    Favourite Dmc
    Report
    Apr 28th 2013, 6:42 PM

    @Jordan. Get yourself a copy of ‘Think and Grow Rich’. This will an accompaniment for a great life ahead of you. Best of luck

    28
    Install the app to use these features.
    Mute Emmet Walsh
    Favourite Emmet Walsh
    Report
    Apr 28th 2013, 6:51 PM

    Jordan you are a legend. Very inspiring, best of luck with everything.

    36
    Install the app to use these features.
    Mute Clare Fitzgerald
    Favourite Clare Fitzgerald
    Report
    Apr 28th 2013, 8:10 PM

    Well done Jordan. I went to school with your mother so it’s easy to see where you got your brains. What a great journey you’re on. Best of luck!

    30
    Install the app to use these features.
    Mute Paul Keane
    Favourite Paul Keane
    Report
    Apr 28th 2013, 11:13 PM

    Nice one JC. Bet ya he wasn’t expecting u to respond. I have a 3 and a half year old son. I hope he grows up like u.

    25
    Install the app to use these features.
    Mute Mike Thomas
    Favourite Mike Thomas
    Report
    Apr 28th 2013, 6:39 PM

    Whether or not this young man gets any Dragons to invest in his business, he seems to have the drive and passion to be a success, best of luck to him.

    38
    Install the app to use these features.
    Mute Ciarán
    Favourite Ciarán
    Report
    Apr 28th 2013, 5:54 PM

    Nice entrepreneurial spirit and all but I hope he has something new to show the investors on that show. Having looked up the ones he’s made so far, they’re the type of stuff I’d be proud of had I made them at that age but I certainly wouldn’t be going looking for investment to start a company based on it.

    A guy commenting on one of the game trailers offers some criticism and advice (albeit rudely) and the kid responds by willy waving saying how he’s been on tv countless times, talked at conferences and knows the creator of twitter. 13 year old behaviour. Yes. CEO behaviour, no. He’s not close to ready based on what I’ve seen, but that’s not to say he shouldn’t keep going with making games, just that he’s jumping the gun a little.

    Judge for yourselves though, link below:
    http://www.youtube.com/watch?v=B76PwdmPO1U

    34
    Install the app to use these features.
    Mute Marc Anthony Power
    Favourite Marc Anthony Power
    Report
    Apr 28th 2013, 8:32 PM

    This is the kind of person who will create future companies of value and more importantly act as a positive role model for other young people. … fair play and good luck to him

    26
    Install the app to use these features.
    Mute Jason Bourne
    Favourite Jason Bourne
    Report
    Apr 28th 2013, 5:24 PM

    My mother, my wife and now Jordan Casey!!!!!!!

    21
    Install the app to use these features.
    Mute Continent Simian
    Favourite Continent Simian
    Report
    Apr 28th 2013, 6:43 PM

    Why the red thumbs? That was funny. :)

    6
    Install the app to use these features.
    Mute BadDrivingIreland
    Favourite BadDrivingIreland
    Report
    Apr 28th 2013, 7:55 PM

    Well done lad.

    19
    Install the app to use these features.
    Mute Killian Mullen
    Favourite Killian Mullen
    Report
    Apr 28th 2013, 6:22 PM

    After seeing both episodes last week at a screening for all those involved it was great to see some of the brilliant ideas these students had and getting to talk to them about their experiences. Hope for the future of entrepreneurial Ireland.

    17
    Install the app to use these features.
    Mute gary power
    Favourite gary power
    Report
    Apr 28th 2013, 5:22 PM

    Not working on iPhone

    16
    Install the app to use these features.
    Mute Jed I. Knight
    Favourite Jed I. Knight
    Report
    Apr 28th 2013, 10:48 PM

    You have to admire kids like this wee lad, I sincerely wish him well. Maybe he should be aiming his pitch at our Minister of Education though, with technology everywhere now, almost everyone has either a smartphone or access to the net, and this will only increase in the future.
    Surely programming and technology should be a major school subject instead of something some smart kids learn themselves, our kids should be learning things like this in school, basic electronics and engineering instead of relying on others like the excellent Coder Dojo to do this job.

    http://coderdojo.com/

    16
    Install the app to use these features.
    Mute Billy Nomates
    Favourite Billy Nomates
    Report
    Apr 29th 2013, 12:26 AM

    Fair play for having the get up and go, I downloaded 2 games, 1 was unplayable (Green Touch?) and filled with ads.. Barry asked what coding language he used and said AS3. Adobe Flash is a dying software and a way to make money from free games is in app purchases( Angry Birds etc) not ads – a long way to go but I would concentrate a lot more on development/collaboration of the products, one to watch and best of luck, my 2 cents.

    15
    Install the app to use these features.
    Mute thomas patrick
    Favourite thomas patrick
    Report
    Apr 28th 2013, 5:49 PM

    Video doesn’t work

    8
    Install the app to use these features.
    Mute Paul M. Barrett
    Favourite Paul M. Barrett
    Report
    Apr 28th 2013, 8:04 PM

    Fair play to him and I hope he does well out of it. I don’t think I’d like to work with any of those dragons though.

    7
    Install the app to use these features.
    Mute Aidan
    Favourite Aidan
    Report
    Apr 29th 2013, 9:18 AM

    Childhood fail

    1
    Install the app to use these features.
    Mute Jordan Casey
    Favourite Jordan Casey
    Report
    Apr 29th 2013, 7:53 PM

    Is that not saying that if a kid loves soccer and plays it all the time that it’s a “childhood fail”? I think of it as any other hobby and I love it :)

    15
Submit a report
Please help us understand how this comment violates our community guidelines.
Thank you for the feedback
Your feedback has been sent to our team for review.

Leave a commentcancel

 
JournalTv
News in 60 seconds